Posts tagged retinitispigmentosa
눈부신 용기| The One with Dagmar Jamieson – On Living with Stargardt Macular Dystrophy: Episode 37 (2021)

The More Sibyl Podcast Presents

눈부신 용기| The One with Dagmar Jamieson – On Living with Stargardt Macular Dystrophy: Episode 37 (2021)

Happy Thanksgiving, fam!

From moving countries and learning new languages (German and then English) to adjusting to gradually losing her eyesight from the age of 13, Dagmar has grown to become tenacious and inspiring.

Dagmar Jamieson, my cousin's mentor and a life coach to many, became legally blind as a teenager. She was diagnosed with Stargardt macular dystrophy at an early age. She is happily married with a son and a certified life coach, business owner, and community leader.

In this episode, Dagmar shared her journey from Czechoslovakia to Austria and then Canada, adjusting to a new environment and learning new languages. Then there was the gradual loss of her sight and her determination not to let any limitations hold her back. You'll learn about some myths about blindness, as well as how strong and determined an 8-year-old can be amidst life-changing circumstances.

Dagmar's life is inspiring. She has demonstrated great rigor and an unbeatable outlook on life. We are grateful for her, especially in this thanksgiving and her impact on those around her. You should definitely listen to this episode because Dagmar's story will make you thankful.

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눈부신 용기| The One With Sola Adewumi - On Winning Against All Odds: Episode 23 (2021)

The More Sibyl Podcast Presents:

눈부신 용기| The One With Sola Adewumi - On Winning Against All Odds: Episode 23 (2021)

If resilience and strength were a person, it would be my dear cousin, Sola Adewumi, a woman who is chasing her dreams against all odds.

Sola is a mum of two who is currently studying for her nursing degree in Canada. In this episode, she opened up about battling with failure, the several low moments she has experienced, and the invaluable lessons they have taught her. She also talked about her relocation to Canada and the behind-the-scenes information on transitioning to nursing from digital marketing in a foreign land!

In this episode, we explore our childhood traumas and their impact on adulthood, being cousins, how Sola’s rare, genetic eye condition, retinitis pigmentosa (an eye disease that causes progressive vision loss) – greatly affected her education, and making a career switch from digital marketing to nursing. Sola took the IELTS examination nine times before getting her desired score! Listen to find out what she did differently on her final attempt. Perhaps you are struggling with failure, this is an episode to encourage you to keep going on.

PS: Because of the nature of our relationship, this episode with my cousin contains some dark humor and outright ridiculousness that might be uncomfortable to some listeners. But it’s all in good jest – and just what you do as cousins!

PPS: Using this episode to generate awareness for retinitis pigmentosa. As of the time of this recording, there’s yet to be a cure for this debilitating disease. If you will like to read more about it and lend some support, click here: https://rarediseases.org/rare-diseases/retinitis-pigmentosa/

Recommended Song: “Keep Holding On”– Avril Lavigne (2007)

Keep holding on,

모 /Mo!/

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